dementia – Jaime Alexis Stathis

Nanny Must’ve Sent You From Heaven

Mimi often woke up in the morning disoriented, and began the day asking questions for which neither of us had the right answer. “Where’s Poppy” she’d want to know, and we’d tell her that her husband had died two year prior. “Jesus Christ,” Mimi said, “You’ve gotta be kidding me. Where the hell have I been?”

“Want more coffee, Mimi?” I asked, attempting to keep her in the present.

“How about Alice?” Mimi asked, “Alice hasn’t been around in ages. Is she mad at me?” Every morning while we nibbled on toast and scrambled eggs or Mimi’s favorite—a hard roll from the bagel shop with butter and jelly on both sides—Mimi inquired on the whereabouts of her husband and three sisters, and my mother and I took turns telling her—as if for the first time—that they’d all died.

By the time we reached the end of the line of questions, we’d barely get a breath in edgewise before Mimi started in again at the top. My mother often ran from the room, face in her hands either from laughter or tears, leaving me to break the news, again. Mimi wanted all the details for each person including cause of death, date of death, if Mimi had been notified, and if had there been a proper wake and burial.

“I can’t believe nobody told me,” Mimi pondered with each one, both hurt and pissed, her heart breaking dozens of times every day. In the beginning, my mother and I were patient, and we’d give her the details, but after multiple rounds we lost our stamina for the specifics, and answered Mimi’s questions with one-word answers:

Dead. Dead. Dead. Dead

It was brutal and direct, but we were doing our best. We hated lying to Mimi, but my mother and I later learned that it’s best not to give more information than the dementia patient can process. For example, if they think their sister is alive but they just haven’t seen her lately, it’s best to keep it simple and respond with something neutral like, “Hmmm. You know, I haven’t seen Virginia in a little while either.” The middle stages of memory loss are tricky—Mimi couldn’t put her finger on it, but she had a hunch that she didn’t know. “I’m all mixed up,” she’d say to us, “I don’t know if I’m coming or going.” And then she’d laugh, because laughter was Mimi’s best defense.

Mimi’s three sisters were her best friends and she saw them every day unless someone was traveling. They ate more meals together than they did with their own husbands, and it was as if Mimi could feel it in her body that she hadn’t seen her sisters. Lying to Mimi felt wrong, even if it was best for her, and when my endurance for the dance had worn out, I’d answer her question with another question. “How about lasagna tonight? We’ll make it from scratch, you and me?”

Shortly after I showed up to help take care of Mimi, it became clear to me that her mood was most manageable when we rooted in the present. We went for rides in the car, got manicures, and watched the news, but nothing grounded Mimi more than watching me cook. As the days turned wintery, we went for fewer walks and rides in the car, which meant more time in the house, which could be a danger zone for the three of us. “I can’t stay cooped up like this,” Mimi would say, “I feel like I’m suffocating.”

I came up with the idea to prepare our main meal of the day cooking-show style, which meant I cut and measured everything into little glass bowls before starting the performance. I did this so that the putting together of a meal leaned away from the utilitarian and into the territory of an actual event, though Mimi was the sole attendee to my show. I usually started right after breakfast, afraid that if we missed a beat Mimi might wander into dangerous mental territory, might get upset, might forget that she loved me. Left alone in the sketchy neighborhood that her mind had become, Mimi could get nasty. She’d get up in my face.“Who the hell died and made you boss?” My mother was always afraid Mimi would throw a game-changing punch. “Cover your teeth,” my mother whispered, covering her own mouth with an open palm behind Mimi’s back, as if me losing a tooth to my grandmother’s unlikely punch was our biggest worry.

“You have something to say to me, Maureen, you can say it to my face,” Mimi roared as my mother shrunk into herself even deeper. My mother was afraid of her mother—she was afraid to challenge her, afraid to confront her, afraid to lay down any sort of law. By default, it was up to me.

I tried to stay ahead of Mimi’s temper, like doctors advise staying ahead of the pain after surgery, so as soon as breakfast was over, I’d sit Mimi down at the kitchen table with a cup of tea and a cardigan draped over her shoulders. I peeled carrots, diced onion, and minced garlic. I filled little bowls with ingredients. I braised bones, caramelized vegetables, and reduced stocks into glazes. I deveined and reconstituted. I did not cut any corners. While I worked, Mimi and I chatted. We talked about what I was making, and I told her step-by-step how I was going to do it. I’d tell her about a childhood friend I visited, or a book I was reading, or a movie I’d watched the night before after she’d fallen asleep. As long as Mimi engaged in real-time conversation she stayed safe from the questions she couldn’t remember the answers to. I’d ask if she wanted to help, but she usually didn’t.

“I’m enjoying myself just watching you,” Mimi said, “It’s like being in the kitchen with Nanny, with my mother.” I loved that she loved it, so day after day I hunted down time-consuming recipes from The New York Times, Zuni Café, Marcella Hazan, Julia Child. I felt like a disciple to advanced cooking techniques, and sometimes worked on two or three meals at once, sweating the eggplant for the next day, brining the chicken for the day after that.

The downstairs kitchen, Mimi’s domain, remained like a warzone, but I filled our upstairs kitchen with smells of a home and loaded our plates with colorful, nutritious food. After dinner, my mother did the dishes while I sorted the leftovers, and Mimi stayed at the table. Sometimes, even after hours of being in the kitchen together, Mimi not only forgot that had I spent the afternoon cooking, but also that she’d just eaten a full meal.

“I don’t know what you’re doing babydoll, but if you’re fixing something to eat don’t worry about me. I’m not hungry.” Her words took out my knees. I slumped against the sink. I didn’t want to get mad at Mimi, didn’t want to use a sharp tone. I didn’t want to say, “Of course you’re not hungry! You just ate a roast chicken dinner and still have chocolate frosting on your mouth from the cake I walked twenty blocks to buy!”

My cooking-show pace wasn’t sustainable on a daily basis, and sometimes I was too emotionally drained to even think about cooking, so we’d eat leftovers or get takeout from one of the thirty ethnic restaurants in the neighborhood. There were also days that we had other responsibilities, like getting Mimi to a doctor’s appointment. It wasn’t the physicality of moving Mimi to the appointment—physically she was fit—it was the fact that Mimi had spent her life avoiding doctors at all costs. “You want to have something wrong with you?” She mused, “Go see a doctor! You’ll go in without a worry in the world and come out with ten prescriptions!”

Mimi’s prescriptions included Hershey bars, chocolate milkshakes, and jelly donuts.

One night, after a particularly taxing day of wrangling Mimi to a doctor’s appointment, I offered to help Mimi get ready for bed. She usually wanted to do it by herself, but that night I saw the fatigue creeping up from her ankles. She was too tired to even wash her face, so after peeling Mimi out of her bra and snuggling her into flannel pajamas, I settled her into the broken-down recliner where she slept, the place that had been my grandfather’s until he vacated that throne. I found a clean facecloth and put warm water and a bit of soap on it. I brought the facecloth to the recliner and Mimi tilted her head up, closed her eyes, and let me wash her face.

I looked down at my grandmother’s feet, toes squeezed together tight inside nylon knee-highs. “Want a foot massage?” She smiled. I squeezed my fingers inside the tight band just under her knees and peeled off the stockings. I fetched a basin of warm water and soaked the towel, then washed and dried Mimi’s feet. She was bashful, but didn’t resist. I cuffed her pajama pants as high as they would go, and rubbed lotion up and down her legs.

“Well, shit,” Mimi joked, “I’d have shaved if I’d known this was going to happen!” I reminded her that she only shaved for weddings and funerals, and Mimi’s quick wit was on-point.

“Well I hope you’re not dressing me for my wake! I’m not dead yet! And I know I’m not getting married…Or am I?” Mimi couldn’t remember the basics of life, but she never missed an opportunity to crack a joke.

I creamed Mimi’s feet, and then found a cozy pair of socks that I put on her before tucking the blanket in tight. I stood to leave, but Mimi held out her hands so I washed, dried, and creamed those too.

“Ok,” I said, “You all set?” I should’ve known better, I should’ve known my Mimi.

“Do we have any cookies?” Mimi asked, “And maybe a little glass of milk?” I set a tall stack of Oreos and a short glass of milk on her side table that was cluttered with expired coupons and crystal dishes full of half-disintegrated rubber bands and paper clips distorted beyond utility. I kissed Mimi goodnight, and was walking away when she grabbed my hand.

“Nanny must’ve sent you from heaven to take care of me,” Mimi said, and I choked back tears because I felt it too, knew she was right. The strength I had was coming from somewhere outside me, but there was nowhere else I wanted to be. “I don’t know what I’d do without you,” Mimi said, “Please don’t ever leave me.”

I remember this day. It was a cold, damp day, and Mimi and I went to get manicures because we were at our wit’s end inside the house. We got out, and the mood improved. I remember thinking it was silly when I asked the gal to take a photo of us with our nails drying, but now I’m happy as hell that
I’m not afraid to do the silly thing.

A Year and A Day

I have a love-hate with the iPhoto feature that shows only the photos from the Last 12 Months. Love is scrolling to the top for a visual wake-up call that reminds, “Look. See. You’ve come so far.” Hate is “Hold up, yo. Where’d last year go?”

Up until the turn of the year from oh-thirteen to oh-fourteen I could look at my Last 12 Months and still see my life in Missoula, even if it was just the tail end of a good, long run. Then, in the first few days of January I could no longer see my life in Missoula, but the images of my leaving of Missoula remained.

Friday marked the anniversary of the day I left, and was the last day these pictures were in the Last 12 Months folder.

Now, within a short span of time (short enough to be measured in hours) my life in Missoula has vanished from my iPhoto past year’s record. The oldest photos right now are of me saying goodbye to my friend Sam, in Jackson, and then there are photos from the road, followed by the ones of my car with an elk splattered on the windshield and hood. Some things are better forgotten, except they’re not because then we’d also lose the lessons and what a shame it would be to lose the opportunity to learn.

And so it goes as a year peels away. What’s here today is tomorrow a year and a day away.

January 3rd also marks the anniversary of both a departure and a fresh start for my dear Missoula friend, Mikey Heinbach. As it turns out that was the day after he lost his job and the day he decided to get sober. Not everyone does a bang-up job the first time around, but Mikey’s a real success story. You can read his store HERE, and I’d encourage it if you need a story of faith today or any day.

Beneath Mikey’s you can also see the incredible support and comments from his friends and supporters, many of them in Missoula. And then, if you still don’t know, you can ask me why it was hard to leave a place I love, a place that gives great hugs. Yes, I’m anthropomorphizing, but Missoula really is a city that has human characteristics, its hug giving just one of them.

At times the hug of a close-knit town can feel like a net that says “Don’t worry we’re not going to let you fall. Trust us.” But it can also feel a bit like a noose. It’s a real yin-yang type of place, that Missoula, with a duality that’s deep-rooted.

There’s so much space in Montana, but sometimes it felt, to me, like there wasn’t enough to bounce off of. Living now in The City affords me more to bounce off of than any person could ever need in her entire lifetime, but here something else is lacking. Here you have to stay alert, pay attention. A person can’t just space out and go for a walk, and today I’d give just about any-any-anything to be able to hike up my beloved Waterworks Hill. I look this picture five (gasp!) years ago, on New Year’s Eve 2008. (The reason there’s nobody on the trail is because it was quite a few degrees below zero.)

When I first lived in Missoula there was a billboard-sized peace sign on top of the hill, and because i lived underneath it I used it to navigate my way home.

The thing is: I loved my life in Missoula and the people I met there are hands down the best I’ve met anywhere ever. If I ever live somewhere again and have friends half as good I’ll consider myself blessed. But despite that, when i was there I often wanted to go where nobody knew my name. I craved anonymity in a fierce way. When I left it felt like I was breaking up with the town I loved, not because of lack of love, but because we just weren’t as right for each other as we’d once been.

There were times I thought maybe we just needed to restructure our relationship. Or maybe we needed better boundaries. Or maybe just a little space, because no one person (place) can be everything to another. Then i realized maybe it wasn’t Missoula; maybe it was me. Maybe it was me in Missoula.

We parted on good terms. I changed my driver’s license and plates, but still have a bank account and a storage unit there. It chokes me up in a weird way to think about giving up those things, but that could be because I’m currently in a lengthy limbo, which my friend Emily gently reminds me is not a destination. My Missoula roots are timeless, but like most breakups that don’t end with a circle reconciliation: I’ve (kinda) moved on. I’m not even in a committed relationship with another place, but still: I’ve moved on.

{But what I wouldn’t give to be there for an hour or two on a Sunday morning…..}

I first moved to Missoula as a twenty-six year old divorcée, which was not exactly how I’d pictured it. I was young enough to reclaim my twenties (I couldn’t have picked a better place for that task!), but too young to realize that my favorite parts of my life would be the ones that missed the mark and went off the grid.

I love planning, but as it turns out the best stuff is what happens in between everything you’ve planned, in the accidental gaps where there’s just enough space for a little magic to happen. And where does this magic happen: in the places where we pause and breathe. If anyone—even the world’s best psychic or astrologer—had suggested that I’d be living in NYC (under one roof!) with my mother and grandmother I’d have suggested that person throw in the towel on clairvoyance and sign up for some vocational school classes ASAP. I wouldn’t even have explained it like crazy, I’d just have simply said, “There’s no way that would work.”

Now, the situation here is far from perfect, so far that it’s at the top of the list of most frustrating scenarios I’ve ever been involved with. The end is only occasionally in sight, and it’s a squirrely little thing that moves toward and away as it fancies. Some days are better than others, but the fact that we get along enough that no blood’s been shed is nothing short of a miracle.

I’d have bet good money against us, and I’m 33.333% of us.

I lost my footing on Friday, and not just because of Winter Storm Hercules that dumped a lot of snow on a city that has nowhere to put it. Highways shutdown and airports closed—lives were affected in big ways. Lives were lost. At least sixteen people died as a result of Hercules, including a woman with Alzheimer’s who wandered away from her house. I just kind of lost my mind.

It was 100% unsafe for my grandmother to go out, yet Mimi gets antsy when she’s trapped inside the house so we were stuck with a lose-lose situation. When Mimi’s restless she asks more of the same questions with greater frequency. Her general confusion is heightened and her tears more frequent. Her anxiety skyrockets and you can’t be a part of our household and not be affected.

To have all three of us confined in the house on a snow day under the best of circumstances could be dicey, but a few other issues left me on the brink of implosion so I took one for the team and headed for the streets. Many sections of the sidewalks were unshoveled or only partially cleared because I’m not kidding when I say this city has nowhere to put the snow, and more than a couple inches cripples the place. I think we got around eight.

Despite the single digit temps and frigid wind, I doubled-down on my down, wore a thick hat, two pairs of gloves and a scarf that I wrapped around my face. I figured tears frozen to my face would only complicate my situation. I didn’t think about where I was going, I just went, and this was probably a good thing since I wasn’t exactly in an optimal position for decision-making. Somehow, instead of going to a neighborhood that I like, I went to a place called Jackson Heights.

A few weeks ago I went to Jackson Heights to meet someone who might’ve helped me navigate my healthcare options, but it was a frustrating bust and I hated almost everything about that day including the crux moment when I decided to walk home instead of getting on the subway. In the process of walking home from Jackson Heights I discovered what it felt like to be in a real-life version of Epcot where several ethnicities are represented on every single block. On many of those blocks I didn’t see another white person. I didn’t hear English.

NYC men aren’t known for their restraint, but in Jackson Heights they get right up in your face to call you precioso or caliente. The women are pushy too. One woman touched my eyebrows and attempted to drag me into a hole-in-the-wall salon for what I could only imagine (based on the dragger’s permanently surprised face) would have been a complete violation of my eyebrows. When I dug my heels in and used the sharpness of an affected Spanish accent to make my “No!” sound more serious, she effectively questioned my decision by raising one of her penciled eyebrows at me.

I said “no gracias” to a manicure when another over-coiffed women made it clear without words that I was either blind or stupid not to do something about my naked nubs, and although her price fell with every curt “no,” eventually our eyes locked in a moment of understanding and she let me go. For the rest of the walk home I kept my pace determined and my eyes locked and loaded.

That’s the thing about international travel, or a day in Jackson Heights, or communicating with animals: so much is said through gestures. It’s what’s critically missing in email, texting, and virtual communication, and why we need to take extra care with those modes.

Actions can be louder than words and words can be louder than actions and sometimes we’re wrong. And as much as my mother might disagree, I love to be wrong. I love to have my beliefs flipped inside out. I’m tickled to discover a new way of looking at something.

I’m living in Sunnyside, which this New York magazine article lists as reason #11 to love NYC because it has cuisines from twenty-seven countries and five continents within a seven-block stretch of Queens Boulevard. It’s remarkable. While I may not be living in a bubble over here, Jackson Heights offers a completely elevated level of multicultural. I struggled to get a cup of coffee (despite knowing enough Spanish to do so), and even though I said no to azucar when asked how many I got enough in my cup to make my eyeballs twitch.

After my first trip to Jackson Heights I ~~swore~~ thought I’d never go back. It happened to be a rainy day, and by the time I got home my cotton pants had absorbed water nearly to the knee. They’d grown so heavy that I had to keep one hand on them to keep them from falling right off, so with one hand on my waistband and one on my umbrella I was quite a sight hobbling through Jackson Heights, though nobody noticed. It’s the kind of place where you can sing out loud and half walk-half dance as if you’re a backup dancer or in a Prancersize exercise video and nobody notices. They’re certainly not going to notice if you’re gimping your way down the street.

I wrung my pants out in the bathroom sink when I got home, and the water that filled it was nearly black. NYC’s streets are filthy—this is not a secret—but I think there’s extra soot and grim in Jackson Heights where the trains run overhead on an elevated track that’s open, like a roller coaster, to the ground below. Residue from the trains (including but not limited to steel dust from the tracks and asbestos particles from brake linings) falls to street level where we wear, breath and probably eat it.

So, yes the “real” Epcot even has its version of a monorail except the whole thing is far more exhilarating. At first it’s scary when a train flies by because you can’t hear the voice of a person standing a foot in front of you or the music blasting out of your earbuds. It’s hard not to imagine that at some point the track’s going to fall from the sky, but like all of the sensory onslaughts that NYC offers: you get used to it.

After that day I considered a tongue-in-cheek Facebook post about how anyone craving an international vacation—but lacking time or cash—could just take a trip to Jackson Heights. When ready to repatriate to the United Stated, explorers could travel via Woodside (which was originally an Irish neighborhood, and still resembles Ireland in places) into Sunnyside, which after Queens’ 2-legit-2-quit Epcot, feels like a quaint, serene New England village.

That night, under my covers and hiding from the world, I was positive that I’d never go back. But despite the fact that I’ve done considerable research in this department, I never cease to be amazed by the power of a perspective change, and yesterday that’s exactly what I needed. I needed to step outside my comfort zone in order to step back into myself. I could’ve gone anywhere, but I chose my nemesis.

I could’ve walked in the direction of my yoga studio in Astoria, or to the shops and restaurants in Hunter’s Point, which are right up my alley. I could’ve walked myself right across the 59^th Street Bridge to Manhattan, or down to the East River for a view of Manhattan. (This was taken in September, but the view is good any time of day or night.)

But I wasn’t looking for up my alley, and I wasn’t looking for my comfort zone. I needed an experience that would transport me out of myself for a while, and so I chose the place that almost undid me a couple of weeks earlier. I wanted to see if I might find something different there, which was of course to find something different within. I questioned my questionable judgment, but figured that the worst that could happen was that it was a flop and I’d move on the Plan B, C, D etc.

The first thing that happened—before I was even out of my neighborhood—was that I started to laugh. It’s well founded that moving the body is important for mental health, and something I’ve known about myself since I discovered track in seventh grade. I wrote about it during the dark ages of September 2012 when I ran despite unhealthy air quality in Missoula as a result of forest fires.

As I walked into “Epcot” I turned off my music, and I found that listening to the multitude of languages allowed me a mental vacation. Instead of focusing on my interior dialogue, I heard the unfamiliar words but focused on nothing in particular. I quieted. I found the pause. My laugh turned from a nervous response over entering into the unknown into a genuine chuckle. Just to play it safe, I kept walking.

All in all, I probably walked close to two hundred blocks on Friday, yet I could’ve walked a hundred more. The unfamiliar parts of the world—even the ones that are close by— ignite my curiosity and sense of discovery, and allow me to recharge and restore.

Or maybe it doesn’t so much matter where I walked, what I heard, or what I saw. Maybe I was ripe for a perspective shift, and the physical movement and change of scenery enabled me to tap into what was already inside me.

Just because time is trimming the past off my Last 12 Months photo folder doesn’t mean it’s gone. Not even close. Those pictures are like shadows. They’re there, they just don’t exist without the light.

Here’s a picture of me and Lucky in shadows almost a year ago on a rural road in New Mexico, and then another of us yesterday reflected again the side of a grocery store.

Here are a few more photos of some of the sights of Jackson Heights: 1) An Indian fabric store; location Noted, 2) Kababs and phone cards: one stop shopping, 3) I don’t think so….., 4) Discoteca, 5) Where to buy those white shoes from “Vacation,” 6) The mannequin has dance moves, 7) These kids are ready to party too…, 8) A few “everything stores,” 9) Pink Horse, 10) Hitting Lucid on the way home; lucid is one of my favorite words….What a perfect reintegration station.

“Sing your song. Dance your dance. Tell your tale.”

Last week a video went around of Ash Beckham’s TEDx talk about how she responds to kids who want to know if she’s a boy or if she’s a girl. She explains that it’s confusing because her hair is short and she wears boys’ clothes, but that she is, in fact, a girl. She breaks it down: “You know how sometimes you like to wear a pink dress and sometimes you like to wear your comfy jammies? I’m more of a comfy jammies kind of girl….”

If you missed that video, here it is: Coming Out of Your Closet.

Ash’s talk wasn’t about gender, pink dresses, or jammies. It wasn’t even about homophobia or about coming out of “the” closet. It’s about the fact that we all have closets, but “We are bigger than our closets and a closet is no place for a person to truly live.”

She says that a closet is really just a hard conversation, and that we can’t compare our “hard” with anyone else’s. “Hard is not relative. Hard is hard.” In my case right now, hard is taking care of my grandmother who suffers from both hoarding and dementia, and for some people hard is the fact that I’m talking about it.

My honesty’s been met with minimal resistance, though I know that vulnerability and honesty make some people uncomfortable. But I also know this: other people’s discomfort has nothing to do with me. I’ve done a lot of work learning how to accept and own my truth, and though it was hard I’m coasting down the other side of a life spent minimizing my truth for the sake of other people’s happiness, which is basically an Acela train to frustration and unhappiness. That way of living does nothing to foster authentic connection between people.

Over the years I’ve also learned a few things about truth in writing, with my favorite being that “The more intimate and personal the detail, the more universal the story becomes.” {That’s me quoting myself. I wrote that when I was just starting to become a braver writer, and the blog post it came from is here: WE TELL OURSELVES STORIES.

Laura Munson (a writing mentor and role model of mine) is a courageous writer who wrote a book about her marriage falling apart and her reaction to it. Before she had a book she published an essay in the New York Times’ Modern Love column, and you can read that here: “Those Aren’t Fighting Words, Dear.”

Laura told me (as she will anyone who asks her) that a person can write about anything if she writes with compassion. It’s true. I wrote with compassion about my experiences taking care of and cleaning up after my grandmother, and I was rewarded with an overwhelmingly positive response. People wrote to me and said, “Me too.” They wrote and asked, “Why didn’t you ask for help?” “When can I come?” and “How can I help?” I didn’t have any good answers except that asking for help is scary, it makes us vulnerable, and we worry about meeting resistance.

Friends wrote and called to make sure I’m okay, to offer respite, and to commend me for both my willingness to do this hard work and my grit in talking about it. Some readers forwarded my post to friends and family who work with the elderly as nurses and therapists, and then those people reached out and offered their support. Some of these people were strangers until suddenly they weren’t, and I wept with gratitude for those hands and hearts extended in my direction. It was intense, but it felt good to allow people in to my world. I was validated and shored up by people who might not even know me if they passed me on the street.

Other folks were less thrilled. Some asked my mother if she’s mad at me for flinging open our closet doors, but she wasn’t. My mother is the person most worried about the contents of my memoir-in-progress, yet when she’s been questioned about my two recent blog posts she did something incredible: she defended me. My mother acknowledged that she’d be the first person to call me out if I’d written anything that wasn’t true, but that I’d written only the truth and that she was proud. If you know my mother you know that she adores me but doesn’t let me get away with much.

There’s a built in liability befriending a writer (in particular a nonfiction writer), but for some people there’s an overlap that is not a choice, and that’s with family. A family member called my mother to express his anger over my sharing of our family’s stories. He couldn’t believe that my mother wasn’t mad and was even more dumbfounded that she wasn’t trying to stop me. Some of the stories I told are old ones but I told them not as a rant, but as reference points to my present situation. My present situation caring for my grandmother and the ensuing story does not happen to be this angry person’s story. As far as I can see his hand has not stretched out in my direction.

I listened patiently as my mother recounted the hard conversation she had where I was pummeled for telling the truth, a truth that is also hers. She’s glad I’m telling the story because she knows how lonely it can be inside a closet, but for my mother there was an additional element to the hard conversation and her hackles went up: someone was attacking her baby.

I’ve hit the pause button on my life to help my family of three, and although I wouldn’t have it any other way it’s not without sacrifice. Unfortunately the angry family member failed to recognize either my benevolence or my hard work. He made my grandmother’s story about him and criticized my content for one reason: my truth made him uncomfortable.

My mother brought up as an analogy Frank McCourt’s Angela’s Ashes, a Pulitzer Prize winning tragicomic memoir (um…thanks, mom….) that is basically required reading for Irish-American New Yorkers. Of course he’d read it, but didn’t see the connection, and said to my mother, “That’s different; that book is about his family.” My mother said, “Yes. And?….”

He responded, “The difference is that Jaime is writing about my family.”

Oh. My. God.

“It’s her family too,” my mother said, because after that what else is there?

In Angela’s Ashes McCourt wrote, “Sing your song. Dance your dance. Tell your tale.” Certainly there were plenty of people who opposed his truth telling, but it didn’t stop the book from being crazy successful and widely received by those who also believe that closets are no place to live. McCourt had fairly late in life success, but taught writing and gave his students the best advice: that they are their own best material.

Our stories do not exist alone, and they intersect with the stories of the people whose lives coexist with ours either as a result of biology or through choice. In my recent “brave post” I mention my mother minimally (it’s really a story about my grandmother) and the only thing that could be considered a slight toward my mother is when I mention that I summon the courage she lacks. But what I said is true and she knows it. Any shame she might have for not being strong enough to do this on her own pales in comparison to her gratitude for my strength to put into motion a plan where there previously existed only a downward spiral. My mother has never been in denial about my grandmother’s illnesses, she just wasn’t able to step back and see the way through (and eventually out of) it.

Even if my mother denied my truth, would that make my observations of my experience off limits? (If you say yes you can private message me and so we can talk about it. Or we can talk about it here. Your call.) It’s just like what Ash Beckham says about hard: we can’t compare our hard to someone else’s hard just as we can’t compare our truth to someone else’s. It just depends on which side of the fence you’re on, and I happen to be on the dirty side.

I like the dirty side of the fence just as much as I abhor living in a closet. I know that mental illness can be an uphill battle, and I also know that not talking about mental illness doesn’t make it go away. I’ve done some research in books and in real life (too much, probably), and I’m 100% certain that not talking about it makes it worse. Silence can be deadly. If you don’t believe me ask anyone who’s lost someone to suicide, depression, addiction, or a combination. Ask someone if silence helped when they worried about whether a loved one was going to use or while they waited for someone to show up alive after they’d disappeared. In silence.

After my blog post last week a few people shared an article with me that was published in Slate. The title is “Nobody Brings Dinner When Your Daughter is an Addict.” It’s amazing. Please read it.

Sure it’s hard for people to ask how it’s going with my grandmother, but the brave ones do, and many tell me about their struggles. One friend wrote about her fear of talking about her family’s mental illness and thanked me for my honesty. She said, “I hope someone is bringing you dinner,” which is just as good as someone actually doing it and the perfect antidote to the stones being thrown by people who aren’t offering anything but fear dressed in a thin veil of judgment.

I’m not wavering on my position to tell the truth nor have I even considered backpedaling out of it. Here’s why: for all the people who aren’t hearing what I have to say there’s a hundred who are, and that number has the potential to grow exponentially as one says to another, “Read this; It might help.”

I’m not delusional in thinking the sharing of my story can change the world, but I know that real change happens one person at a time and that I’ve helped more than a few. One said that enabling is a “lonely place to live,” and another told me about her experience with family mental illness and “trying to minimizing the consequences of her behavior and picking up the pieces of her actions.”

What we’re saying to each other is “We’re in this together; I’ve got your back,” and this more than counterbalances the haters. Dr. Brené Brown says, “Don’t try to win over the haters; you are not a jackass whisperer.”

Brené Brown’s been on my hotlist for a couple of years, and in her now famous TED talk on shame she said this:

If we’re going to find our way back to each other, we have to understand and know empathy, because empathy’s the antidote to shame. If you put shame in a Petri dish it needs three things to grow exponentially: secrecy, silence and judgment. If you put the same amount of shame in a Petri dish and douse it with empathy, it can’t survive. The two most powerful words when we’re in struggle: me too.

She also said,

“If we can share our story with someone who responds with empathy and understanding, shame can’t survive….“Owning our story can be hard but not nearly as difficult as spending our lives running from it. Embracing our vulnerabilities is risky but not nearly as dangerous as giving up on love and belonging and joy—the experiences that make us the most vulnerable. Only when we are brave enough to explore the darkness will we discover the infinite power of our light.”

If that’s not gorgeous i don’t know what is.

Closet’s are not as safe as people think. Sounds, words and thoughts can creep in there, and those dark places aren’t as hermetically sealed from the light as the closet-dwellers believe them to be. I don’t know what makes people think closets are safe. It could be shame, guilt or some other emotion masquerading as anger.

Denial is the first stage of grief, and it’s followed by anger. We circle through denial, anger, bargaining and depression until we eventually reach the blissful place of acceptance. Sometimes a person gets to acceptance then takes another lap through the list because life isn’t always (or ever) as easy as having a checklist. The path to acceptance isn’t always (or ever) linear.

Truth challenges. It stretches. It pushes limits of comfort and safety. I know that some family members aren’t angry, but are instead sad about what I’ve written about my grandmother. It is sad, but sadness can’t erase reality. You know what helps? Yeah: empathy.

My mother and I are in this together and we’re in deep. The best part—because I’m a silver-lining kind of girl—is that my mother and I are cooperating and working together in a way we never have before. We’re living under one roof and barely fighting because we have something bigger to deal with than the pettier stuff that’s ruled us for too long. The woman who’s been most afraid of my truth is actually embracing it, and that’s a beautiful thing in the midst of a messy situation. But here’s the thing: I wish it wasn’t necessary for my mother to defend me.

There’s a very good chance that the (closet-living) people who need to be reading this aren’t. Maybe they’ve written me off, maybe they don’t care, or maybe my presence hasn’t even reached their closets’ radar. I have no control over that, just as they have no control over what I write. I also have no control over any debriefings my mother might receive over my actions, but if anyone has a problem with me it would behoove them to talk to me about it directly otherwise it just might get my Irish up.

The “angry relative” interrogated my mother, and asked her if I’d interviewed my grandmother and then wrote about what she’d told me in confidence. It was nothing like that. My grandmother and I have conversations like we’ve always had, and like a lot of the best conversations they happen spontaneously. My grandmother’s concept of time and reality is altered now, but occasionally she’s able to really be in the present and I cherish those moments.

Maybe it was sitting in a kitchen where generations of our family’s women have prepped and cooked meals. Maybe the cup of tea steaming in front of her triggered something. Maybe the act of peeling of an orange sparked a memory. It’s impossible to know what triggers my grandmother’s reminiscing at this point, though I know that when she’s ready to talk I’m ready to listen.

We value our time together, and when it’s just the two of us she opens up more than in a group because in a group she tends to space out. It could be because she can’t hear everything or because she can’t keep up with the pace. When it’s just the two of us in a quiet room talking directly to each other our hearts engage with each other’s more specifically.

Our conversations and sharing make her happy, and the other night after our good, honest talk she made up a little song and sang it to me, “I’m so happy I could dance all night.” We danced a little then I helped her into some cozy pajamas, because it’s life’s simple acts that are the most challenging to her these days. I poured her a glass of milk, got her into her recliner with a blanket and turned on the television. My Mimi is definitely a comfy jammies kind of girl.

SMILE THOUGH YOUR HEART IS BREAKING

Sometimes as I’m walking down the street I’ll catch a scent that reminds me of my grandmother. It’s not the aroma of a flowery perfume or a roast in the oven or the cinnamon sugar of fresh-baked pastries: it’s a sour smell. It’s garbage.

The smells surprise me. They emerge from restaurants’ grease traps, from musty, piss-soaked sections of concrete, from dank subway platforms. The volatile molecules seep out of confined airshafts or from one of New York City’s many manholes that try, but fail, to contain an underbelly overflowing with waste.

My olfactory memory engages where my grandmother’s arrests, her deficit a result of mental health issues that include dementia and OCD, both undiagnosed due to an irrational fear of doctors, both also an expression of her disorders.

The grandmother I know now is not the grandmother I’ve always known. That woman: she’s gone. Throughout my childhood my grandmother taught me many lessons that I took as truth, but only now am I questioning the validity of what she preached and modeled. She told me not to take on anyone’s problems as my own, to let life’s baloney roll off my back and, as one of her favorite songs instructs, to “Smile though your heart is breaking.”

My heart breaks for my grandmother’s lifetime of stifled emotions and for her belief that a smile is a permanent Band-Aid. It’s challenging to keep smiling as I clean up my grandmother’s life’s accumulation, as the stories my family has told disintegrate like the dust that covers her cherished collections.

I am an only child of an only child, which means there are exactly two of us to care for and clean up after my grandmother. My mother and I have spent the past five weeks sorting, donating, and disposing of the results of my grandmother’s hoarding, but walking into her house it’s impossible to tell a single thing has been removed let alone a dumpster’s worth. It looks like the woman who lives there is destitute and without anyone who cares about her, though both couldn’t be further from the truth. There’s a fine line between choice and disease.

A couple decades ago my grandmother tore up the floor in her kitchen and hall exposing several layers of the previous generations’ style choices, leaving behind the heavy ridges of rigor mortis-like glue. In the hall is a tower of tile that’s been waiting to be installed for twenty years, though for my grandmother it’s “never the right time.”

Only one of the tiles has been used though not for its intended purpose; she’s used it to cover a gaping hole in her bathroom window where a pane of glass is missing. I don’t know what happened to the window, but because my grandmother has a temper it’s not out of the question that she put her fist through it. This isn’t something she’d share with us though she’d smile, look us in the eye and deny it. She’ll do anything to preserve her façade.

Her kitchen only has hot water, several light switches are taped over, and most of the house’s wall outlets are inaccessible. Those that can be reached are overloaded with tangles of outdated extension cords that snarl in corners and run like track marks across the parquet floors.

There are two broken televisions, furniture you couldn’t give away, and orphaned lampshades stacked like miniature versions of Pisa. There are enough envelopes, blank greeting cards and paper clips to open a small office supply store. My mother has shredded a dozen thirty-gallon bags worth of bank statements and tax documents from the last century, and we’ve recycled just as many bags of long-expired coupons, cancelled envelopes and discount-store circulars.

As my mother and I remove the garbage—dozens of blown out light bulbs, a plastic whiskey barrel full of mop handles and curtain rods—we reveal additional disasters and it becomes clear: my grandmother’s house is crumbling under the weight of what it’s been carrying. It’s trying to take my grandmother with it.

Until recently you had to shimmy sideways to get from one end of the apartment to the other. Because it’s unsafe, my mother and I have threatened to call the fire department or insurance company and my grandmother responds by slamming a door in my mother’s face or telling me to pack my bags if I’m there to bust her chops. My grandmother’s lost her ability to reason, but one truth is as clear as it ever was: she doesn’t want anyone coming inside her house.

She has enough sets of fine china, sterling silver flatware from Tiffany, and glassware (for everything from apertifs to digestifs) to host dozens of guests, but there’s a catch: she doesn’t entertain. She never has. I can count the number of people she’ll invite into her home on one hand, and it’s been so long since anyone has been allowed inside for so much as a simple repair that what was once a home has deteriorated into a hovel.

My grandmother has resolutely denied anyone the opportunity to clean for her, but with the courage my mother lacks I matched my grandmother’s fierceness and finally said, “I am not going to let you die in that filthy apartment.” It started as a threat, but then there I was in a mask and rubber gloves, stuffing two black contractor bags full of moldy clothes from her bathtub. I worked for four hours in that bathroom, but she didn’t seem to notice or more likely she didn’t want to talk about it.

Last Sunday my mother took my grandmother to visit relatives, and I stayed behind to tackle the bedroom. I started by bagging up and dragging out most of the items belonging to people who no longer have a pulse. It seemed cruel, but we just can’t keep it all. What got us into this mess is not what will get us out. I repeat that like a mantra.

I found hundreds of crumpled and balled up knee-high stockings, dozens of crocheted doilies, and seventeen curtains still tagged and wrapped in plastic. I unearthed enough ace bandages for a professional ball team, at least six sets of slippers, and a mint-condition abdominal exercise machine (my grandmother is almost ninety).

I discovered a box of hundreds of laminated prayer cards for every funeral she’s been to and some that she hasn’t, and just as many keys to long-defunct locks, some of which opened doors that never even belonged to our family. I found stacks of restaurant napkins because how else is she supposed to get the rolls home?

I dug out yellowed newspaper cutouts on depression, anxiety and the danger of emotional attachments to things.

A cedar trunk and several Rubbermaid bins held enough bed linens to outfit several families, and I bagged most of them for Goodwill. My grandmother sleeps in my deceased grandfather’s old, broken down recliner in what should be her dining room, but I kept a few sets of sheets in case she ever changes her mind. Erring toward hope, I decided to freshen up the recently cleared off bed.

I pulled back the musty comforter and sheets, and saw that my grandmother had used a ballpoint pen to draw faces and write words on the fitted sheet. I crawled onto the bed and kneeled over her art for closer inspection. Some of the faces had hair, some sported sideways smiles, and some had a straight line where a mouth would be.

She signed her autograph a few times, and in black Sharpie penned a note to me, “Hi Jaime,” she wrote, “Hope all is well with you, Love ya,” and next to it a simple, “Hi Jaime” in perfect cursive. With an impossible lump in my throat I stripped those sheets off the bed.

I’ve always loved that verb for changing a bed: strip. I exposed it; I made it naked. It felt wrong—stripping my grandmother of her secrets—but someone has to do it and the job’s defaulted to me. The bare mattress was deplorable. Its satin cover has vertical splits, and a ruptured side seam exposed the inner foam and wire. Even without a body sleeping on it the mattress came undone from the weight of what’s been piled on it for years.

I located a mattress cover, a set of soft, clean sheets and a heavy, brocade coverlet that my parents bought on their honeymoon in Greece. I pulled the linens taut, tucked tight hospital corners and jammed clumpy pillows into cases and decorative shams. I made it beautiful. I made that bed as if it matters, as if it might make a difference.

When I finished I stood back, admired my work and burst into tears. When I’m doing this work with my mother I try to keep it together, but alone I let it rip. I sobbed and worried about how much of my grandmother’s turmoil is inside me, and I wondered, as I often do, why we’re so culturally adverse to showing our true feelings. And I don’t mean just my family, though we seem to have a bad case of it.

My cleaning is not going to mend my grandmother’s brain or heart, but yet I continue. I dig through the rubble and scrub surfaces in part because it needs to get done, but also because an organized exterior might calm some of the agitation that percolates inside her. I have faith and hope in that possibility, but I do this work for a different reason: I do it for love.

On some level I’m doing this work more for me than for anything or anyone else. I do it because loving someone when it’s difficult is one of life’s greatest challenges and rewards.

We have a responsibility to care for our young and our old, and often the work is terrible. I have to tell my grandmother, “You wore that yesterday. You can’t wear it today.” I don’t mention the previous days because she can’t remember those. I have to tell her when she wets her pants and needs to change, and then I have to take the soiled garments and bag them because if I don’t she’ll squirrel them away. It’s degrading for her, but I do it with as much compassion and grace as possible and I’m constantly amazed at what we’re capable of when choice is removed from the equation.

I like a plan, but my mother and I were so far out of our depths that drowning pushed in, so I hired two geriatric care consultants to come assess the situation and help us devise a strategy. The five of us sat around my mother’s dining room table—actually, my grandmother stood, too lathered to sit—and we didn’t make much progress because all my grandmother wanted to talk about was how furious she was at me for inviting strangers into our private business. I assured her I did it out of love, and she said, “If this is the way you show love I’d rather you hate me.”

She asked me who died and left me boss, told me I should be ashamed of myself, and ordered me to leave her the hell alone. The emotions passed, and within minutes she’d forgotten her anger and agreed with the consultants who told her how lucky she is to have a granddaughter who cares so much. I told my grandmother I was confused because minutes earlier she’d told me to pack my bags. At the end of my rope I asked, “Which is it?”

“I love you when you’re not giving me a hard time,” she said laughing, and my reply shocked me, “Are you telling me that your love is conditional?” The underlying causes of OCD and compulsive hoarding are immense, but among them are a fear of not being loved and a desire to receive love through control. With the added attraction of dementia, my grandmother’s well-honed defenses are down and her natural inclinations are up. To say the situation is dicey is an understatement.

One of the phrases my grandmother has always used to diffuse a situation is one she still employs regularly, “Everything is under control, baby. Don’t you worry.” For most of my life I’ve believed everything my grandmother’s told me, but those days are over. I’m no longer buying; I just can’t. It’s not helping and it isn’t the path that will guide us out of this mess.

I’ve realized that the more out of control things are the more adamantly she’ll try to convince me that they’re not. The more she smiles in the midst of chaos, the more I prepare for the bottom dropping out. I actually feel encouraged when she cries, because although it’s sad, she’s expressing her emotions without resorting to rage or compulsions. This is good. I think she’s as tired of the worn-out stories and excuses as I am.

Each day new truths manifest from the dregs, and the path is clearing. I see that it’s the truth that will get us out. Well, that and smiling.

Safe(ty) is an Inside Job

About a year ago a woman asked me to close my eyes and picture a time that I felt safe. I breathed in and out and thought, but came up blank. This isn’t true, of course—I’ve had many safe times in my life—but I was so caught up in the tumult of the moment that I couldn’t come up with one person, place or thing that made me feel 100% safe.

The woman told me to take my time, and finally I came up with a fixture that has always been a part of my life and in which I feel safe: the bathtub. “I feel safe in the bathtub,” I told her, “I love water. I can go under water to drown out noise from outside. I can drink tea, light candles, read magazines. I can be alone.”

In fact, there’s a whole chapter in the book I’ve been busting a nut over writing that is about various bathtubs in my life and how they’ve come to represent both safety and freedom. Safety and freedom, like most of what human beings require and desire, are two of the things we need to give ourselves. Options, Acceptance and Love are some others…

I picture brows furrowing and noses wrinkling and bullshit meters flying above the high-water mark. And trust me: I’m hearing you.

We can be given freedom, but if we don’t take it then what’s the use? People can give-give-give, but the action aspect is up to the recipient. We can be protected by circumstances that are intended to keep us safe, but nobody can force safety on another person, so if we don’t feel safe then we don’t feel safe. And it’s the same thing with options, the same thing with freedom, acceptance and love.

“You can lead a horse to water, but you can’t make him drink” is reported to be of the oldest proverbs still in use today. It’s 11^th century old, and so ingrained in our DNA that it’s almost impossible to conceive of breeding it out of us. And why would we want to? A leopard can’t change his spots, you know.

Right? So let’s talk about safe. It’s everywhere and nowhere. It’s having an ear to listen to your story or a hand to hold. It’s access to food, shelter and water. It’s knowing what you want and more importantly what you don’t.

Safe isn’t a place you can go to or depart from. It isn’t something you can touch.

We can think we’re safe and then be caught, arrested or harmed. The crowd can cheer because you’re safe or not, then one man in a uniform can say the majority was wrong. It makes me think that we learn more on childhood softball and baseball diamonds than we realize at time. More than hand-eye coordination, good sportsmanship, and how to identify poison ivy when chasing after foul balls.

Safe is a friend you’ve known 90% of your life who ends every conversation and email with a single word: LOVE. The one-word statement doesn’t require an “I” or a “you.” The door swings freely in both directions with that kind of really safe love.

Loving isn’t always safe. It can be an express train to loss and grief. It can lead to sleepless nights (weeks and months) and to questioning the unanswerable. You can retroactively wish your train had made a few local stops. That it wasn’t so fast, so possibly reckless, so potentially unsafe. But sometimes we don’t know the hazards of a thing until we’re in the midst of it.

When I bought my house in Honduras I wanted to get a safe. It just seemed to make sense, except when I was told why it didn’t. First of all, word would spread that I had a safe but no bars on my windows and no watchy; people would think I had something valuable in the safe and they’d want at it.

Truth be told, I only wanted a safe for a couple of items: the deed to my house, the diamond earrings from my grandparents, and the Tiffany watch my dad got me for my college graduation that has engraved on the back: Jaime, KEEP ON BELIEVING. Love, Dad. But in the end what I cared about more than any of that was my US Passport, which says a little bit about how safe I felt on that island.

“Don’t get a safe,” I was told. “They won’t think about what you have or don’t have in there; they’ll just yank it right out of the house and will take half the house with it if they need to. “Apparently “they” will saw through wood or jackhammer concrete to remove a safe.

I’ve learned something about myself in the past year: I feel safe when I trust my intuition. I feel safe when I listen to my heart. I feel safe when I’m being authentically me and not worried about judgment, ridicule or unintended consequences.

But trust me: I don’t always feel safe.

Safety might be an inside job, but humans have a tendency to worry about others despite the fact that worry doesn’t solve anything, and right now my mother and I are worried about how to keep my grandmother safe and in the thick of it I’m also trying to keep myself safe, honest, and authentic.

My mother is more hard-wired to worry than I am, but I worry too, and together we worry about my Mimi’s memory. For two days she told me she liked my dress so often it seemed that every time she blinked her eyes she was seeing me for the first time. Yesterday I found a ring that I liked and knew I could have because she always says, referring to her home, “You can have anything you want, babydoll.” Today she saw it on my finger and said, “I used to have a ring like that, but yours is nicer.”

Yeah.

We sat on the patio tonight after dinner and I was working on this blog post and she asked me when my homework was due then complimented me on always being a good student. She asks when I’m going home and when I’m coming back and all day I told her the same thing. Tomorrow to the first question, three weeks to the second. I’ve told her twenty times that her baby brother is coming to see her next week, but I have a feeling she’ll just have to believe it when she sees it.

Yesterday I told Mimi we needed to have our garage door replaced, and she said we can’t make any decisions like that without consulting with Poppy. My mother and I drew in deep breaths then I just came out with it, “Poppy is dead, Mimi. He’s been dead almost two years.”

She wasn’t really buying it. “Who’s in charge?” she asked, and the three of us froze-up then I pointed to my mother. “Ok,” she said, ”Ok.” I called immediately to set up an appointment with the door company and within twelve hours I’d taken a full garage and made a Jenga-like structure In one corner.

Action makes me feel safe, though the process was iffy. I lifted heavy things over my head as I balanced on wobbly chairs. Dust and debris slid off bags and boxes onto my head and I wondered about asbestos and mold and lead paint. I used my knees like levers and slung huge pieces of furniture around as if they were bags of crumpled newspaper. I thought, “This isn’t safe” but stronger than that was the other voice that said, “This needs to get done.”

My mother worries a lot more than I do about the outrageous amounts of stuff that my grandmother has accumulated, but I’m more fascinated the way an archeologist would be. Her apartment looks like a graveyard for VHS tapes, shadeless lamps, broken picture frames, dustbusters, empty jars, knee-high stockings and thirty-nine years of pictures of me.

The bedroom door opens about 25%, just barely enough for a body to slide in or out. The glass in the breakfront is opaque due to photos, mass cards, lottery tickets and newspaper clippings and only God knows what’s on the other side. There is a pathway from one end of the apartment to the other, but it’s tight in places and I have a strong suspicion that the fire department would deem it unsafe.

In addition to all of the papers, I sometimes run across things that look like they could combust. There are solvents and aerosols and liniments that are decades old. It has to be an unsafe place, but to someone who hoards it is safer than being without these things. She calls them her treasures. These “treasures” provide her with perceived comfort, security and safety, though in reality they’re achieving the converse effect. It’s hectic in there, for me, but I’m not sure it’s my job to judge.

Aside from hostages situations we can’t actually “keep” other human beings, and when keeping another safe all we can do is our best. Safe(ty) is an inside job for everyone except the very young and the very old, and my mother and I are doing our best to keep an old woman safe.

Being in control might make one person feel safe. A lack of space might make another person feel unsafe. We can say to each other that’s too high, that’s too hot, there may be sharks, where’s your helmet, can’t you slow down, didn’t you learn the first time? We can say all these things, but we can’t tell another person what makes him or her feel safe. Maybe we learn that another’s recklessness makes us feel unsafe, and that’s okay too.

Because we’re human we will fall short more often than we’d like to, or we’ll offer help that isn’t wanted, or we’ll confuse our barometer for safety with someone else’s, forgetting that safe(ty), in the end, is an inside job.

INTRO for the non-Facebook readers:

This is the third installment of the Striped Shirt Review, where Emily Walter and I blog on the same topic and post it the same day. We’ve done it twice so far, but got a little off track with summer traveling (me) and home buying (Em). But here’s the thing: we’re not so much on a track anyway. It might be “better” to have a schedule, but as it is the Striped Shirt Review evolves organically and semi-spontaneously.

One of us will have an idea and will throw it out there, say, toward the end of a ninety-minute marathon phone conversation. Then we’ll ping-pong it back and forth until there’s a teensy pause in conversation and then we hush….”Yep…that’s it.” This week’s topic is SAFE.

I pulled my anchor last January in Missoula, the same city where Emily just purchased a home, so you’d guess that safe might mean very different things to us….or not. Our lives tend to run parallel even when they seem to be going in opposite directions. Let’s find out. Find Emily’s blog HERE.

Song and Dance

I’m pondering the end of summer. It’s a transition that can be hard on many of us, and I’ll write more about it in the next day or two, but in the meantime I wanted to post a few family pictures from summers in the 1930’s and 1940’s.

My grandmother is eighty-eight, and if you ask her she’ll tell you she’s doing great. She might even give a shimmy and a shake and ask if you think she’s still sexy though the question is rhetorical and there’s only one right answer. At eighty-eight you’re never what you used to be—not of body, mind, or spirit—but she still has a special sparkle, which I attribute to her stellar attitude. She’s always told me to “be my own boss” and “don’t let other people’s troubles get you down.” Her health advice is to eat a full size Hershey bar as often as possible (daily, for best results), get a good night sleep, and don’t worry too much. “Let that stuff roll right off your back,” she’s always said to me.

Maybe she has such a positive perspective on life not because her life has always been easy, but rather because it hasn’t. She dropped out of school in the eighth grade so she could look after her younger siblings while her mother went to work. Her father regularly disappeared on drinking and gambling binges and it wasn’t unusual for him to leave his family of six with no food or money. In more recent years she lost her three sisters and her husband in a four year span, and it would be unfair and untrue to say that the cumulative loss didn’t take a toll on her. These are not extraordinarily troubles or losses; they’re a part of life. And she knows that.

When I think of my Mimi I think of her singing, and I think of two songs in particular. The first one is, I think, her own creation. It has a lively tune and a coordinating dance and goes, “We’re gonna have a good time, we’re gonna celebrate!” (I think this song originates with my grandmother—perhaps at one point it started as a mantra—so if I’m wrong and you know the origin please let me know.) The other song is more melancholy, but the message is sweet. It’s a Nat King Cole song that starts out, “Smile though your heart is aching. Smile even though it’s breaking.” When she sings that song she likes to dance, and she’ll grab me and we’ll faux-waltz around the room; neither of us lead, we just look into each other’s eyes adoringly.

Sometimes life is a song and dance that comes naturally, and sometimes it takes more thought, effort, and coordination. Sometimes more than we have. But now onto the photos that remind me that even in hard times there are always some good times.

I love everything about this. The light. Her pose. The outfit!

Same outfit, different pose. Mimi on the porch of her mother’s bungalow in Rockaway, Queens.

My mother mimicking her mother’s pose.

My mother on her grandmother’s shoulders in Rockaway. Nanny was a tough bird and a true gem of a woman.

My grandparents at a lake. There’s something about the blur that I love.

Lounging in a Hammock and reading the newspaper on a bench. There’s nothing about these pictures that isn’t pure bliss. I love that contented smile on her, that “I’m reading” look on him.

Rockaway was their beach, and I love this sassy pose.

They didn’t always go to the beach, and sometimes stayed in the city. I found this picture in June when I was visiting and I asked my grandmother about it. “It’s Central Park,” she said, and when I asked for more detail she looked at it for awhile then said, “It’s nuns in the park.” I did not need to press her for more information; her memory is fuzzy on some of the past these days and as much as I wanted to know more I settled for “Nuns in the park.” What else is there to know, really? They were having a good time, they were celebrating.

Last Sunday my mother and her cousin took Mimi out to Rockaway for the afternoon. Here she is on the boardwalk:

I think she’s still pretty damn cute.